Patient Testimonies | March 20, 2020
My name is Janet Kerrigan, and my life forever changed on December 1, 2011 when I was diagnosed with multiple myeloma. I live in Myrtle Beach, South Carolina, and was working as a Critical Care Nurse when a sudden, searing pain in my chest sent me to the emergency room. What began as a suspected heart attack quickly escalated to the devastating diagnosis of an incurable, terminal blood cancer. My life expectancy was grim: just 1 to 2 years.
This diagnosis didn’t just impact my health; it shattered my financial stability. I went from a stable nursing income to a disability check that barely covered my monthly needs. The relentless cycle of costly medicines and procedures drained my savings, retirement pension, and 401k.
My myeloma journey has been long and complex. Following my diagnosis and extensive testing, I underwent initial treatment, including a stem cell transplant in June 2012. While it brought some stability, complete remission did not occur, and I’ve required years of ongoing maintenance therapy and several treatment regimens as my disease evolved.
In January 2023 I pursued CAR-T cell therapy, specifically Carvykti. , Though physically and emotionally demanding, including concerns about side effects and financial strain, this intensive process offered a new hope. A generous grant helped cover expenses, easing the burden of traveling for treatment. My hospital stay was brief, and ringing the bell upon discharge was a deeply emotional moment of triumph.
Incredible news followed. After initial uncertainty, my specialist confirmed no signs of myeloma cells were found in my bone marrow. I have been in MRD negative status ever since, a true miracle I thank God for every single day.
Despite this profound victory, the financial reality of having lived with multiple myeloma remains a constant concern. For years, my daily medication, Revlimid, cost $800 per capsule, resulting in a substantial monthly copay of $24,000. I relied on grants to help cover these astronomical expenses, and the uncertainty of their availability meant living in a constant state of worry, wondering if the drugs that were keeping me alive would be covered.
No one should have to face bankruptcy or fear losing access to life-saving medications. I never asked for this illness, and I know countless others struggle with similar financial burdens. I speak out for myself, my family, and every individual battling multiple myeloma, and I’m demanding that our healthcare system ensures access to necessary, affordable prescription drugs.
