My body is a battlefield.
It took me about seven years to complete my bachelor's degree due to the setbacks and complications that come with sickle cell.
Sickle cell had literally deteriorated my body.
There are already so many roadblocks to finding care and even qualifying for treatment –– high prices should not be a factor for patients.
Another day is not a guarantee.
At 23 I lost my best friend to this disease and I realized that, for any of us with sickle cell, another day is not a guarantee. I know that when I walk into the ER, I might not walk out.
A cure for this disease would change the lives of so many.
We need laws in place that will allow all patients, regardless of background, to have access to life-saving medication.
Taxpayer-Funded Drugs and a Pricing Crisis: A Cure for Sickle Cell
American Taxpayers invested hundreds of millions of dollars into a gene therapy to cure sickle cell disease; now a drug company is likely to make billions and price it out of reach.
10 Drug Corporations Drive One-Third of Taxpayer Spending in Medicare Part D
New data show how negotiating for the 250 most-expensive drugs could save patients, taxpayers billions.
Insulin affordability is a crisis.
I have to find innovative ways to gain access to the drugs I need just to survive. I ration my medication and buy expired or leftover insulin.
Vertex is pricing life-saving medicines out of reach.
If the children for whom these medicines are created continue to suffer and die, it’s as if the drugs were never made at all.
