Stay Updated
For all press requests, please reach out to [email protected].
News and Reports
Global Genes: ORPHAN Cures Act Removed from Senate Budget Reconciliation Bill
While industry groups and rare disease patient advocacy organizations, such as the Biotechnology Innovation Organization and National Organization for Rare Disorders, support passage of the ORPHAN Cures Act, other groups, such as Public Citizen, AARP, and Patients for Affordable Drugs Now, have opposed it. “This decision helps protect the popular and effective Medicare Drug Price […]
News and Reports
Fierce Pharma: In setback for biopharma, Senate version of Trump's tax bill drops Orphan Cures Act
For its part, the Patients For Affordable Drugs Now (P4ADNOW), an organization focused on lowering drug prices, touted the exclusion of the Orphan Cures Act from the Senate’s reconciliation text as a “direct rejection of the pharmaceutical industry’s greed-driven agenda.” “This decision helps protect the popular and effective Medicare negotiation program and its promise of […]
News and Reports
Axios Pro: Megabill has little-noticed drug pricing changes
Merith Basey, executive director of Patients for Affordable Drugs, countered that the measure is “simply put, a giveaway to pharma.” “Americans are asking Congress to do more to lower drug prices, and believe that drug prices are far too high,” she added. “This is going exactly in the opposite direction that voters are demanding.”
News and Reports
FierceHealthcare: House GOP advances budget megabill, imposing stricter Medicaid work requirements
Patients For Affordable Drugs Now slammed the inclusion of the ORPHAN Cures Act in the package. This provision widens the types of drugs excluded from the drug price negotiation program under 2022’s Inflation Reduction Act. “By letting high-cost drugs with multiple orphan uses avoid negotiation and extending the timeline before negotiation for other medications, lawmakers […]
News and Reports
The Lever: The Pharma Puppets Keeping Your Drug Prices High
A report published this Monday by Patients For Affordable Drugs, a national patient advocacy nonprofit, reveals that six organizations ostensibly dedicated to expanding health research and health care access in fact receive significant funding from the pharmaceutical industry, have leadership with ongoing pharmaceutical industry connections, or both. “There’s clearly a revolving door between many of these groups […]
News and Reports
Truthout: Big Pharma Front Groups Muddle Debate Over Drug Prices, Patient Advocates Say
Patients For Affordable Drug’s report, The Rampant Reach of Pharma’s Hidden Hand, details the links between Big Pharma, Seniors 4 Better Care and five more groups, including the Alliance for Aging Research, the Council for Affordable Health Coverage, and the American Action Forum.
News and Reports
Common Dreams: Report Exposes Big Pharma Front Groups Posing as Patient Advocates
Merith Basey, P4AD’s executive director, said that “when your board is stacked with industry insiders, your primary funding comes from pharma, and your talking points mirror those of drug lobbyists, you’re not a patient advocacy organization—you’re a PR operation.” “Polling shows that Americans are aware that pharmaceutical corporations are the primary drivers of high drug […]