Patient Testimonies

Real Stories, Real People

Patient Testimonies

Kelly Brown's Story

My name is Kelly, and I am the mother and now caregiver of my 23 year old son, Victor. Before he got sick, Victor was smart, funny, and determined. He loved coding and wanted to build video games. He was fascinated by the weather since kindergarten and would tell everyone about approaching storms all over […]

Patient Testimonies

Elaine Kniepfel's Story

My name is Elaine Kniepfel. I’m a resident of Leawood, Kansas, a retired teacher of over 32 years, and school administrator for 15 years. At 83 years old, I’ve had the privilege to travel the world with good health for the majority of my life.  That changed one sunny morning at the age of 70 […]

Patient Testimonies

Stacy Dyke's Story

Living in Shreveport, Louisiana, I’m navigating a medical system that often feels designed against me. My journey is particularly complicated; I live with a constellation of rare diseases including hemiplegic migraines, occipital neuralgia, idiopathic intracranial hypertension, and fibromyalgia, compounded by depression and anxiety. Each day is a battle against relentless pain, a battle made even […]

Patient Testimonies

Susan Vigen's Story

Hi there! My name is Susan Vigen, and I am from South Carolina. I am a patient who has struggled and lived with a severe overactive bladder and interstitial cystitis, requiring me to take the medication Myrbetriq. This medication, produced by Astellas Pharma, has a list price of $460.30 and is charged to my insurance […]

Patient Testimonies

Sonia Vega's Story

Hi, my name is Sonia Vega and I am a patient advocate living in Phoenix, Arizona. I am a mother to two boys and am living with diabetes.  To treat my diabetes, my doctor recommended the prescription drug called Ozempic to help lower my blood sugar down to healthier levels. The problem, however, is that […]

Patient Testimonies

Mary Simmons' Story

My name is Mary Simmons and I am a retired state government employee, from Henrico, Virginia. Most importantly, I am a mother, a wife, daughter of Joseph and Florence Fowler, sister, aunt, and a cancer survivor.  In 2022, I was diagnosed with acute lymphoblastic leukemia (ALL), a cancer of the blood and bone marrow and […]

Patient Testimonies

Diane/Nicholas Basil's Story

Hello, we are Diane and Nicholas Basil from Ellenton, Florida and a retired couple in our 70s. Nicholas was diagnosed with multiple sclerosis in his 30s and has been living with the condition ever since, with a range of experience in various medications with high costs.  For over a decade, Nicholas was on the medication […]

Patient Testimonies

Tim Carpenter's Story

Hello, my name is Tim Carpenter and I am from Chicago, Illinois.  At 77 years old, I only have a couple of prescriptions refilled on a monthly basis that could be financially problematic while living on a fixed income. These prescriptions are Eliquis, a blood thinner, that I am now taking for a newly diagnosed […]