Real Stories, Real People
Patient Testimonies
The COVID-19 pandemic should serve as a wake up call.
My name is Emmabella Rudd, and I’ve been an advocate for insulin accessibility and diabetes research since I was diagnosed with type 1 diabetes at 5 years old. I am an activist and patient advocate, but I’m so many other things as well. I am a student senator at Florida State University. I love art […]
Patient Testimonies
It's hard to even look at my medical bills.
My name is Julie and I’m from Providence, Rhode Island. I was diagnosed with multiple sclerosis in 2007 and, more recently, Crohn’s disease in 2019. I’m currently self-employed and am not sure if I can return to a corporate job full time because my symptoms can be so severe. It feels very lonely at times […]
Patient Testimonies
I had to start stockpiling my insulin.
My name is Elizabeth and I have lived in New Jersey most of my life. I met my husband in high school, and we’ve been together ever since. We love the active retirement community we reside in and all of the friends we have made here. I have a wonderful life. I was first diagnosed […]
Patient Testimonies
Real people like me are struggling.
My name is Laurie and I’m a cervical cancer survivor from Mill Creek, WV. Radiation treatment has left me with many side effects, the worst of which is chronic diarrhea. It is horrible. I am taking three different prescription drugs for these side effects. For nine months, I took Viberzi for chronic diarrhea, and it […]
Patient Testimonies
As patients, we have the power.
My name is Sneha Dave, I am the executive director of the Health Advocacy Summit. I am 22 years old, a lover of the outdoors, and an ulcerative colitis patient. It started for me when I was six years old, had to use the restroom frequently, and was having abnormal symptoms. My mom took me […]
Patient Testimonies
I live at the mercy of drug prices.
My name is Brad and I’m a publishing director living in Santa Cruz, California. I was diagnosed with cystic fibrosis as an infant and I received a double-lung transplant in January 2017. Today, I live at the mercy of immunosuppressive medications that prevent my immune system from destroying my lungs. Thanks to these medications’ steep […]
Patient Testimonies
These drugs could save her life.
by DON KREIS, CF Dad, New Hampshire If you own Boardwalk and Park Place, you rule the world. That’s one of the many lessons I’ve learned from my daughter Rose – who, at 18, is living and thriving with cystic fibrosis. Rose is a scholar who is off to Bowdoin College in Maine this fall. […]
Patient Testimonies
Wall Street and Big Pharma Team Up To Push High Prices For COVID-19 Treatments and Vaccines
BY DAVID MITCHELL AND JULIANA KEEPING As COVID-19 ground the U.S. economy to a halt, one sector has remained invigorated by the promise of huge profits: Wall Street. Investors and analysts are hard at work pushing for the highest possible prices on COVID-19 treatments and vaccines and the profits that will follow. Yes, it’s business […]