Patient Testimonies

Real Stories, Real People

Patient Testimonies

High drug prices make life unbearable.

My name is Anil Kadam and I am a 64-year-old husband and father from Laurel, Maryland. I retired a few years ago, and I try to spend as much time as I can with my wife and my family, as well as on my hobbies, which include working with the HAM radio. I wish I […]

Patient Testimonies

AbbVie is making billions on the backs of patients.

My name is Ashley Krege. I am 35 years old and I live in Houston, TX.  I am also one of the thousands of Americans who took the world’s top-selling drug, Humira. I took Humira to treat a chronic autoimmune condition called psoriasis, which causes pain and inflammation. After finally getting approval for the drug, […]

Patient Testimonies

My body is a battlefield.

My name is DJ and I live in Jacksonville, Florida. I am a single father, an aspiring attorney, and a sickle cell patient. I was 18 months old when I was first diagnosed with sickle cell disease. It was then that I experienced my first real pain crisis, which triggered my parents to take me […]

Patient Testimonies

Sickle cell had literally deteriorated my body.

My name is Amivi. I am from Houston, Texas and I’m a mother, a business owner, and a sickle cell warrior. As a child, I was always extremely ill with little-to-no clear reason why. Growing up in Togo, West Africa, I didn’t always have access to medical care, forcing me to live with the agonizing […]

Patient Testimonies

Another day is not a guarantee.

My name is Arelys Feliz, I’m 29 years old, and I live in Miami, FL, where I work in the health care field. I have a two-year-old boy and a baby on the way. On the outside, I look healthy and well –– a working mom who loves her family, loves to dance, and loves […]

Patient Testimonies

A cure for this disease would change the lives of so many.

My name is Amy Mason-Cooley. I am from Alabama, and I have lived with sickle cell disease nearly all of my life.  I was first diagnosed with sickle cell disease (SCD) when I was 5 years old. My kindergarten teacher, Mrs. Simmons, suggested my mom get me another doctor after noticing my extreme bouts of […]

Patient Testimonies

Insulin affordability is a crisis.

My name is Kelly Smith, I’m 49 years old, and I live with type 1 diabetes, an incurable condition that requires lifelong treatment. I was diagnosed at 15, when insulin cost about $12 per shot. Now, I take the insulin drug Novolog by Novo Nordisk. This insulin works much better than a previous brand, but […]