Patient Testimonies

Real Stories, Real People

Patient Testimonies

Drug Prices are Putting My Son's Health at Risk

Duchenne Muscular Dystrophy is the most common fatal genetic disease of childhood, affecting 1 in 3,500 boys.  In 2007, I found out that my 8-year-old son was one of them. We sought the best medical care, but all the doctors could offer for this relentless muscle wasting disorder was a corticosteroid, an anti-inflammatory medicine that […]

Patient Testimonies

Stacy's Story

My name is Stacy Ransom. I’m from Southern California and I live with Crohn’s Disease. Six months before doctors gave my condition a name, I began to experience excruciating, debilitating pain every time I took a bite of food. Because eating sent shock waves through my system, I rapidly lost weight. I worked at a […]

Patient Testimonies

Can I tell you a story?

  My name is Pam Holt. I’m 68 years old, a mom, a grandmother, and a retired first and second grade teacher. I’ve traveled from my home in Indiana to Washington, DC this week. Before I tell you why, and what I hope to do, I want to tell you what led me here. In […]

Patient Testimonies

Skyrocketing insulin prices threaten Oklahoma family

January 29 Lily McCook’s room is full of stuffed animals, horse posters and Harry Potter books. Early each morning, as she sleeps under a fluffy comforter emblazoned with more horses, her favorite animal, her dad, Clayton McCook, quietly administers her blood sugar test with a lightning-fast poke of her finger. Lily has Type 1 Diabetes, […]

Patient Testimonies

Guest Blog: Becky Hall: Herceptin and Humana

January 26 To view the original post, click here. Recently, I had what I consider to be my first real advocacy experience beyond sharing my personal story and experiences with cancer. It’s an important issue that merits sharing, so here’s the scoop. Over the past few weeks, there has been a serious amount of confusion […]

Patient Testimonies

The Pharma Cycle: More Lobbying, Raise Drug Prices, More Profits, Give Campaign Cash, Repeat

January 25 Pharma’s formula is pretty simple. Step 1: Spend millions lobbying for laws that protect its monopoly pricing power. Step 2: Raise drug prices so Americans spend their retirement savings, college tuition, and credit card debt on overpriced prescription drugs. Step 3: Reward your supporters with campaign contributions! But don’t take our word for […]