Real Stories, Real People
Patient Testimonies
Patients: Buy a little stock in Vertex. And tell your stories.
June 8, 2017 Juliana Keeping, Patient Advisor I am in Boston today, a new shareholder in Vertex, the drug maker that could cure my son Eli’s deadly illness, cystic fibrosis. At what cost? So far, the drugs it has developed cost anywhere from $286,000 to $376,000 per year. The company priced our drugs this way […]
Patient Testimonies
Letter to Maine State Legislature
May 11, 2017 Members of the Legislature State House Augusta, ME 04333 Dear Honorable Members of the House and Senate, My name is Ben Wakana. I was raised in Caribou, ME, and I currently serve as the Executive Director of Patients For Affordable Drugs. We are the only independent national patient organization focused exclusively on […]
Patient Testimonies
Guest Blog: Uninsured with Diabetes in the USA
May 5, 2017 Elizabeth Rowley Three years ago I was visiting my family and friends in the USA for a few weeks and I forgot my insulin at a friend’s house, which was a twelve hour drive away. I was panicked. I decided to look into the cost of a vial of insulin, hoping I […]
Patient Testimonies
David Mitchell Presents at AHCJ Conference 2017
David Mitchell Presents at the Association of Health Care Journalist 2017 Conference in Orlando
Patient Testimonies
Letter to Maryland Governor Hogan
April 17, 2017 The Honorable Larry Hogan Governor of Maryland 100 State Circle Annapolis, MD, 21401 Dear Governor Hogan, My name is David Mitchell. I live in Potomac, Maryland, and I have incurable blood cancer. First, I hope you are feeling well and healthy. Most Tuesdays, I receive a drug cocktail priced at $20,000 per treatment. With 22 […]
Patient Testimonies
March 29, 2017 Dr. Clayton McCook, Edmond, OK I’ll never forget December of 2015. My wife Cindy was diagnosed with stage I breast cancer. After her diagnosis, she underwent surgery, six rounds of chemotherapy, and received monthly infusions of a drug called Herceptin to fight her tumor. Last month, she received the last of 18 […]
Patient Testimonies
Patient Testimonies
Drug Price Debate Could Stall, Unless Consumers Get Engaged
February 28, 2017 Steven Findlay It’s still unclear whether Congress or the Trump administration will try to tackle the prescription drug price/cost issue this year. Amid ACA repeal and replace, and possible Medicaid and Medicare reform fights, it seems a stretch. In recent weeks, Trump has also changed his tune on the subject. Soaring prescription […]