Real Stories, Real People
Patient Testimonies
My name is Bob Parant, and I have been living with type 1 diabetes for 50 years. I am one of the 3.3 million Medicare beneficiaries who need insulin. I was diagnosed during what I call the “dark ages” of diabetes and have had many challenges along the way, including losing my leg. I am […]
Patient Testimonies
My name is Jackie Trapp. I live in Muskego, WI and have been married for 34 years to my wonderful, loving husband. In August of 2015, I was diagnosed with multiple myeloma, an incurable blood cancer. To treat my cancer, I take a drug called Revlimid, and it is unbelievably expensive. With my current Medicare […]
Patient Testimonies
My name is Steven Hadfield. I am 70 years old, a long-time North Carolinian, a husband, a grandfather of three, and a football fanatic. I’m also a rare cancer and type 2 diabetes patient. Living with multiple conditions brings a host of expensive drugs — to afford mine I work multiple jobs. Just for my […]
Patient Testimonies
The current drug pricing system isn’t working for patients like me.
My name is Emily. I’m a 26-year-old from Washington, D.C., and I live with psoriatic arthritis. Growing up, I always had various injuries and illnesses and tendonitis in nearly every joint. I never had a specific diagnosis to explain all of these symptoms until five years ago. My journey to being diagnosed with psoriatic arthritis […]
Patient Testimonies
My name is Emily Grant and I’m from Dallas, Texas. I’m 25 years old and a cystic fibrosis (CF) patient. I was diagnosed as a newborn, and have lived with this chronic illness my entire life. I deal with the financial and personal hardships as best as I can. I want to be able to […]
Patient Testimonies
The pharmaceutical industry preys on families.
My name is Hailey Adkisson, and I live in Salem, Oregon. In August 2020, at just six months old, my daughter, Juniper, was diagnosed with infantile spasms — a rare and catastrophic form of childhood epilepsy. Since then, she has undergone two brain surgeries, most recently, a hemispherectomy which removed the entire right hemisphere of […]
Patient Testimonies
My name is Kitty Kennedy and I live in Tucson, Arizona. I am a retired senior who relies on Medicare, and I have a two-part story to share about how Medicare has affected my life. I am extremely fortunate to have supplemental health care coverage through my retirement plan. It has covered the expensive drugs […]
Patient Testimonies
The prices of their medications could impact their dreams.
My name is Noelle Tuominen, I’m from Livermore, CA, and I’m a mom to two children with type 1 diabetes. My daughter and my son were each diagnosed at 1 year old — they now are 4 and 1, respectively. We quickly realized that keeping people with type 1 functioning and healthy is incredibly expensive, […]