Real Stories, Real People
Patient Testimonies
My name is Melissa Tavares, I am 31 years old and from Edgewater, Maryland. I am a mother of two, with both my son Victor and daughter Nina diagnosed with epilepsy. Parenthood has thus remained a blessing but it has come with its tremendous challenges as no one ever expects to have two toddlers with […]
Patient Testimonies
I am Linda Richardson, from Port Charlotte, Florida, and I have had Multiple Sclerosis (MS) for the past 23 years, going on 24. As an MS patient, my cost of disease-modifying therapies ranges from $2,500 to $15,000 per month. As someone on a fixed retirement income (which started at the age of 42 years old […]
Patient Testimonies
Since the age of 10, I have also been living with Crohn’s Disease. Along with Crohn’s Disease, I have suffered from severe chronic migraines, arthritis, sacroiliitis, fibromyalgia, psoriasis, and chronic pain for as long as I can remember. Something they don’t tell you when you’re diagnosed: You may not be able to pay for your […]
Patient Testimonies
My name is Bob Parant, and I have been living with type 1 diabetes for 50 years. I am one of the 3.3 million Medicare beneficiaries who need insulin. I was diagnosed during what I call the “dark ages” of diabetes and have had many challenges along the way, including losing my leg. I am […]
Patient Testimonies
My name is Jackie Trapp. I live in Muskego, WI and have been married for 34 years to my wonderful, loving husband. In August of 2015, I was diagnosed with multiple myeloma, an incurable blood cancer. To treat my cancer, I take a drug called Revlimid, and it is unbelievably expensive. With my current Medicare […]
Patient Testimonies
My name is Steven Hadfield. I am 70 years old, a long-time North Carolinian, a husband, a grandfather of three, and a football fanatic. I’m also a rare cancer and type 2 diabetes patient. Living with multiple conditions brings a host of expensive drugs — to afford mine I work multiple jobs. Just for my […]
Patient Testimonies
The current drug pricing system isn’t working for patients like me.
My name is Emily. I’m a 26-year-old from Washington, D.C., and I live with psoriatic arthritis. Growing up, I always had various injuries and illnesses and tendonitis in nearly every joint. I never had a specific diagnosis to explain all of these symptoms until five years ago. My journey to being diagnosed with psoriatic arthritis […]
Patient Testimonies
My name is Emily Grant and I’m from Dallas, Texas. I’m 25 years old and a cystic fibrosis (CF) patient. I was diagnosed as a newborn, and have lived with this chronic illness my entire life. I deal with the financial and personal hardships as best as I can. I want to be able to […]
