Real Stories, Real People
Patient Testimonies
My name is Emily Grant and I’m from Dallas, Texas. I’m 25 years old and a cystic fibrosis (CF) patient. I was diagnosed as a newborn, and have lived with this chronic illness my entire life. I deal with the financial and personal hardships as best as I can. I want to be able to […]
Patient Testimonies
The pharmaceutical industry preys on families.
My name is Hailey Adkisson, and I live in Salem, Oregon. In August 2020, at just six months old, my daughter, Juniper, was diagnosed with infantile spasms — a rare and catastrophic form of childhood epilepsy. Since then, she has undergone two brain surgeries, most recently, a hemispherectomy which removed the entire right hemisphere of […]
Patient Testimonies
My name is Kitty Kennedy and I live in Tucson, Arizona. I am a retired senior who relies on Medicare, and I have a two-part story to share about how Medicare has affected my life. I am extremely fortunate to have supplemental health care coverage through my retirement plan. It has covered the expensive drugs […]
Patient Testimonies
The prices of their medications could impact their dreams.
My name is Noelle Tuominen, I’m from Livermore, CA, and I’m a mom to two children with type 1 diabetes. My daughter and my son were each diagnosed at 1 year old — they now are 4 and 1, respectively. We quickly realized that keeping people with type 1 functioning and healthy is incredibly expensive, […]
Patient Testimonies
To keep advocating for others, I need to afford my medication.
My name is Samantha Norris and I’m from Auburn Hills, Michigan. The drugs keeping my Hodgkin’s lymphoma in remission are priced at more than $1 million a year. I’m currently $20,000 in debt due to my health challenges, including from covering the exorbitant prices of my medications. Bills arrive all the time, and I’m overwhelmed […]
Patient Testimonies
Luxury pricing for a necessity.
My name is Kat Schroeder, I live in Arlington Virginia, and since the age of 9, I have been living with type 1 diabetes. That means that every day — every hour, really — since I turned 9, I have relied on insulin just to stay alive. This insulin is currently priced at almost $300 […]
Patient Testimonies
Changes are terrifying because of the high price of insulin
My name is Blythe and I will be 26 in August. I’m a very happy newlywed and live with my husband in Chandler, Arizona. At age 7, I survived a life threatening health scare that landed me in the hospital. Doctors eventually diagnosed me with Type 1 Diabetes. I was very fortunate that my family […]
Patient Testimonies
Drug prices have made me sicker
My name is Ashley Suder. I’m from Morgantown, West Virginia, and I live with lupus, an autoimmune disease where my immune system attacks my healthy tissue, resulting in painful inflammation that damages my skin, joints, blood vessels and brain. Lupus is chronic and lifelong. The drug I take now, Benlysta, works well, but it’s especially […]