Patient Testimonies

Real Stories, Real People

Patient Testimonies

In order to afford my insulin, I cut down my dose

My name is Judith Bentley, and I’m from Dallas, Oregon. In order to stay as healthy as I can, I take more than six medications, including prescriptions to treat bipolar 2 disorder, fibromyalgia, and diabetes. In 2020, the copays for my medication alone were $2,000. Maybe that’s not a lot of money for some people, […]

Patient Testimonies

I live at the mercy of drug prices.

I’m Kami Guiden, from Silver Spring, Maryland, and I’m 33 years old. For just over 20 years I’ve lived with Crohn’s disease, an incurable and chronic and inflammatory illness of the gastrointestinal tract. I also live with celiac disease.  Affording my medications to manage my conditions is always on my mind. I absolutely have to […]

Patient Testimonies

There shouldn’t be a price tag on my life.

My name is Sa’ra Skipper, and I am a diabetes patient and advocate. I have lived with type 1 diabetes since the age of 5. My entire life with this disease has been a roller coaster. I was diagnosed at such a young age that I don’t really know what it meant to live with […]

Patient Testimonies

I have no choice but to buy this medication.

My name is Steven Hadfield. I am 68, a long-time North Carolinian, a husband, a grandfather of three, and a football fanatic. I’m also a rare cancer patient and a diabetic — two conditions that require very, very expensive drugs.  I’ve been a hard worker all of my life. I work full-time at Walmart and […]

Patient Testimonies

No one should have to live at the mercy of drug companies.

My name is Jacquie, I’m 31 and I’m a full-time Art Director in Waterloo, Iowa. In 2011, the same week as my college graduation, I was diagnosed with Crohn’s disease, which causes painful inflammation of the digestive tract. The stress of the cost of my treatment has impacted my life in ways that I could […]

Patient Testimonies

This isn't a game.

If you own Boardwalk and Park Place, you rule the world. That’s one of the many lessons I’ve learned from my daughter Rose – who, at 19, is living and thriving with cystic fibrosis, or CF. Rose is a scholar who is attending Bowdoin College in Maine. She’s an expert dressage rider who hopes to […]

Patient Testimonies

How will my daughter afford this drug for the rest of her life?

My name is Clayton McCook, and I’m a dad and an equine veterinarian from Oklahoma. My 12-year-old daughter Lily McCook could die within days of complications from type 1 diabetes without insulin. A vial of Novolog by the drugmaker Novo Nordisk costs $340, and she needs up to two per month to survive. My wife, […]

Patient Testimonies

I've been forced to ration my insulin or simply go without.

My name is Marcus LaCour and I’m a husband, father, and minister from Cincinnati, Ohio. In 2000, during my sophomore year of high school, I was diagnosed with type 1 diabetes.  After feeling lethargic and having blurry vision, I went to the hospital for what doctors thought was just a viral infection. When they checked, […]